Endo Story
Want to see what endometriosis looks like inside of my body in particular? Click here to view surgery images. Content warning: actual real surgery images from my surgery
I always knew something was wrong, I just never had a name for it.
October 2025 I went to the ER from the most unreal pain I’ve ever experienced in my entire life. I was flashing between extreme heat, sweating, to freezing so cold that the palms of my hands were stinging. Once I was stabilized with an IV and pain medication administered by the health team, I was wheeled to a CT Scan. This scan revealed an ovarian cyst, measuring 7-8 centimeter (cm). For reference, a healthy ovary is on average ~3 cm by 2 cm by 1 cm. The sucker turned out to be so much larger once we finally got to surgery.
My doctor referred me to a OBGYN that had experience with endometriosis after we discussed my history with debilitating pain, periods lasting two weeks, and a whole laundry list of insane symptoms I will include later for you!
After a confirmation with ultrasounds, I was finally ready to undergo surgery to see what on earth was going on in there! And also to identify if it was endometriosis causing my troubles.
I had my ovarian cyst and endometriosis excision surgery on April 15, 2026. During surgery, it was found that I have stage 4 endometriosis spread through my abdomen.
So what now? Endometriosis is a chronic disease. I will take a daily medication with an aim to slow the production of the tissue. I will also now finally have a name to the pain that I’ve been so desperate to have identified.
The Symptom Grocery List:
-Extreme Pain
-Drenching Night Sweats
-Painful, Long Periods
-Intense Headaches
-Bloating
-Bowel/Urinary Disorder
-Painful Sex
-Nausea/Vomiting
-Debilitating Fatigue
-Canceled Plans
-Lost Friends
-I know I’m forgetting a million but it has been hell on earth.
I am still working to get answers, to get symptoms under control, and to find out what is causing it to hurt so much to be in this human cocoon.
Link to donate to my eternal life of suffering and craft materials to cope.
